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Overview

2022 CMTA Summit ReseachersThe 2022 CMT Patient & Research Summit on Saturday, October 1 will offer life-improving presentations on living well with CMT and will provide a comprehensive update on STAR research. Spend the day learning how to manage CMT and hear what you can do to be involved in advancing CMT research through clinical trials and studies.

World-class CMT experts, scientists, biotech partners, and STAR advisory board members will share updates on the remarkable and life-changing progress being made in STAR research. Neurologists, physical/occupational therapists, orthotists, and others aim to share information that will improve day-to-day CMT challenges.

The CMTA celebrates and welcomes our diverse community members from around the world and hopes our virtual platform makes it easier for you to participate in this special day. The sessions will be offered in English and Spanish.

We invite you to join us for this exceptional day of education and connection where attendees will have the opportunity to move from session to session and to participate in interactive breakout meetings that are patient-centered and community driven. You can also join small “community tables” in the Lounge to meet and talk with others who live with CMT.

We hope you will attend live and will bring your questions to the sessions. Recordings will be available soon after the event.

What People Have to Say

Some kind words about our Summit

“Helpful!”

Thank you CMTA for the annual Patient & Family Conferences! It’s wonderful to be able to learn about CMT directly from top experts in the field and to be able to ask them questions. I especially appreciated the 2021 Conference as it was virtual, allowing participants to move around easily from topic to topic from the comfort of home. For those who couldn’t attend, the videos were later posted on CMTA’s website, which is a very helpful resource. Thank you very much!

Angela Graham
Founder, CMTUS on Facebook

“Incredible!”

Last year’s November 2021’s virtual CMTA Patient/Family conference provided incredible multidisciplinary content. The platform’s versatility, speaker’s expertise, and friendly CMTA staff moderators were all extremely impressive and effective. I especially appreciated the ability to watch webinars/talks on demand, following the conference, since the conference began very early for people on the west coast. Additionally, I relished the ability to rewatch a presentation with difficult subject matter or just to solidify the information.

Lisa Weiner
CMTA Community Member

“Wonderful!”

The CMTA Patient/Family Conference which was virtual in 2021 was a wonderful experience to be involved in. Having CMT1a I appreciated the variety of topics and speakers and also for the networking it afforded you as a conference goer.  I look forward to seeing what is offered in 2022 and beyond.

Maryann Ciskal
Buffalo, NY Branch Co-leader

2022 CMT Patient & Research Summit Agenda

(Subject to Change)

  • 10:00 am – 10:30 am ET – Welcome and Keynote Speaker
  • 10:35 am – 11:10 am ET – Is CMT a multi-system disease?
  • 10:35 am – 11:10 am ET – Live Your Best Life Today
  • 11:15 am – 11:50 am ET – Balance Work & Fall Prevention
  • 11:15 am – 11:50 am ET – Hand Functionality & Mobility
  • 12:00 pm – 12:35 pm ET – Surgical Outcomes
  • 12:00 pm – 12:35 pm ET – Cutting-edge Bracing/AFOs
  • 12:35 pm – 1:10 pm ET – A World without CMT: Get Involved
  • 1:10 pm – 1:40 pm ET – LUNCH (Join a community table in the lounge)
  • 1:40 pm – 1:55 pm ET – Let’s Stretch!
  • 2:00 pm – 5:00 pm ET – STAR Research: Path to a Cure

Questions? Click here to contact us!

Steering Committee Members

Edward Nathan

Ted Spring

Tim Nightingale

Daniel Viamonte

Anne Plessl

Leslie Koved

Suzi Moore

Doreen Pomykala

Lonna Henry

Kenny Raymond

Barry Hett

Gordon Lundene

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