Our Mission and History
Our vision … a world without CMT
Our vision … a world without CMT
Our mission … to support the development of new drugs to treat CMT, to
improve the quality of life for people with CMT, and, ultimately, to find a cure.
Answers to some of our most commonly asked questions.
When will registration open for the 2025 CMTA Patient & Research Summit?
When is the 2025 CMTA Patient & Research Summit? Is it virtual or in person?
The 2025 CMTA Patient & Research Summit will take place the weekend of September 5 – September 7 at the Embassy Suites Indianapolis Airport (Plainfield) in Plainfield, Indiana. This year, the Summit will be held in person only; however, Summit session recordings will be available to all after the Summit.
The CMT Summit will offer in-depth presentations on managing CMT and provide CMT research updates from world-class CMT experts, scientists, biotech partners, and CMTA-STAR advisory board members. We hope you will join us for our interactive sessions that are patient-centered and community-driven.
Where is the 2025 CMTA Patient & Research being held?
The Summit will be held at the Embassy Suites Indianapolis Airport (Plainfield) which is conveniently located about 10 minutes from Indianapolis Airport. A link to secure your hotel room at the Embassy Suites Indianapolis Airport (Plainfield) will be provided via email after you register for the Summit. Registration will open in 1st quarter of 2025. Hotel room expenses are the responsibility of the attendee and are not included in the price of Summit registration.
What is the room rate for the host hotel?
CMTA has secured a limited number of rooms at a discounted rate of $189 per night. To receive this rate, a special discount link will be sent once registered for the Summit.
What transportation options are available to take one from the airport to the CMTA Patient & Research Summit hotel?
- The Embassy Suites has an airport shuttle to the hotel.
- Ride Shares – price varies depending on arrival time and availability
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- Uber
- Lyft
- Taxi
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During the 2025 CMTA Patient & Research Summit what are the hours of the conference?
The 2025 CMTA Patient and Research Summit will be a two-day Summit filled with in-depth presentations on managing CMT, research updates and social opportunities. We typically open the Summit on Friday late afternoon with early check-in and then the Summit ends on Sunday midday. All plans are subject to change. Stay tuned for the 2025 Summit agenda.
Will there be an exhibit hall?
We will have an exhibition hall where you can learn about pharmaceutical advancements, assistive technology, and more through one-on-one appointments, product demos, and online resources.
What’s included in the registration fee?
- A full weekend of interactive sessions featuring patient-centered disease management education and CMT-STAR research updates.
- Post-summit recordings of all sessions.
How can I get help if my question isn’t answered on this page?
Please feel free to get in touch! You can email us or call us at 800.606.2682.
What People Have to Say
Some kind words about our Summit
“Enriching!”
“Attending the 2023 CMTA Patient Summit in Boston was a truly enriching experience for me, offering me my first opportunity to meet others affected by Charcot-Marie-Tooth disease. The Summit not only deepened my understanding of CMT through the informative sessions but also gave me the opportunity to make friends! It was an incredible event that provided both knowledge and community.”
-Joshua Fletcher
“Freeing!”
“There’s no better experience than being in a room filled with others who have CMT! It’s freeing knowing that the person next to you isn’t going to bat an eye if you wobble side to side from lack of balance. If you’re able to make it to the CMTA Summit in person it’s 1000% worth the trip!”
-Julie Stone
“Awesome!”
“What an awesome Summit! I’m glad it was offered virtually so that I could attend. I came away from it filled with hope, information, and practical advice for living with CMT. I’m so glad to be a part of this wonderful community!”
-Doreen Pomykala
“Amazing!”
“I can’t say enough good things about the CMT patient summit. It was incredibly valuable to me for gaining updated knowledge on all things CMT as well as making real connections with experts and others with the disease. I would encourage anyone who has CMT or a loved one with CMT to attend this amazing event!”
-Ann Juenger
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