About Us
The CMTA was started by patients, and to this day is powered by a community of patients who are engaged in helping carry out and support our mission. We have a rich history, which you can learn about by reading below.
The National Foundation for Peroneal Muscular Atrophy (NFPMA) was incorporated in 1983 in Pennsylvania as a 501(c)(3) federally recognized charity. The original founder, Dr. Howard Shapiro, was, himself, a patient with CMT and when he began the organization. He hoped to create interest in the disorder within the medical community while also providing support to patients and families dealing with the little-known problem. From its inception, the NFPMA, now the CMTA, has continued that twofold concern by supporting research on the causes and possible cures for CMT and by focusing on patient education and support.
Accessibility
The CMTA welcomes everyone and includes the following accessibility options.
All educational sessions are live-captioned.
The 2024 CMTA Patient & Research Summit will be held in Denver, Colorado and will include the option to participate virtually. Those participating from afar will be able to connect using our virtual platform which offers accessibility settings for those with blindness, motor impairments, visual impairment, cognitive disabilities, and more.
Captioned recordings will be available after the summit to attendees.
Our goal is to make the CMT Summit available and accessible to everyone.
During registration, all attendees are given the option to request that we contact you to learn more about any accessibility needs. Please email us if there is anything further, we can do to improve your experience at the conference.
Answers to some of our most commonly asked questions.
Registering for the 2024 CMTA Patient & Research Summit
When is the 2024 CMTA Patient & Research Summit? Is it virtual or in person?
The 2024 CMTA Patient & Research Summit will take place on September 7th and 8th in Denver, Colorado with the option to engage from afar using our virtual platform. The CMT Summit will offer in-depth presentations on managing CMT and provide CMT research updates from world-class CMT experts, scientists, biotech partners, and STAR advisory board members. We hope you will join us for our interactive sessions that are patient-centered and community driven.
We also are offering community members the opportunity to purchase 2023 Patient & Research Summit recordings. To purchase the full set of recordings, please visit: 2023 Summit Recordings Registration Page.
During the 2024 CMTA Patient & Research Summit
What are the hours of the conference?
The 2024 Patient and Research Summit will be a two-day Summit. A full agenda with hours will be available in early 2024.
Will there be an exhibit hall?
We will have an exhibition hall where you can learn about pharmaceutical advancements, assistive technology and more through one-on-one appointments, product demos, and online resources.
What’s included in the registration?
- A full weekend of interactive sessions featuring patient centered care tips and strategies and CMT-STAR research updates.
- A participatory online experience where you can connect with fellow CMTers, clinicians, researchers, and pharmaceutical partners.
- A flexible schedule with all educational sessions available on-demand post-summit so that you can continue to learn and share resources after the summit concludes.
- A safe space for connection and joy (we know you will be joining us from home so we will have opportunities throughout the summit to stretch, dance and meet others!)
After the Summit
The CMTA will share session recordings after the summit.
How can I get help if my question isn’t answered on this page?
Please feel free to get in touch! You can email us or call us at 800.606.2682.
What People Have to Say
Some kind words about our Summit
“Helpful!”
Thank you CMTA for the annual Patient & Family Conferences! It’s wonderful to be able to learn about CMT directly from top experts in the field and to be able to ask them questions. I especially appreciated the 2021 Conference as it was virtual, allowing participants to move around easily from topic to topic from the comfort of home. For those who couldn’t attend, the videos were later posted on CMTA’s website, which is a very helpful resource. Thank you very much!
Angela Graham
Founder, CMTUS on Facebook
“Incredible!”
Last year’s November 2021’s virtual CMTA Patient/Family conference provided incredible multidisciplinary content. The platform’s versatility, speaker’s expertise, and friendly CMTA staff moderators were all extremely impressive and effective. I especially appreciated the ability to watch webinars/talks on demand, following the conference, since the conference began very early for people on the west coast. Additionally, I relished the ability to rewatch a presentation with difficult subject matter or just to solidify the information.
Lisa Weiner
CMTA Community Member
“Wonderful!”
The CMTA Patient/Family Conference which was virtual in 2021 was a wonderful experience to be involved in. Having CMT1a I appreciated the variety of topics and speakers and also for the networking it afforded you as a conference goer. I look forward to seeing what is offered in 2022 and beyond.
Maryann Ciskal
Buffalo, NY Branch Co-leader
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