Overview

With the goal of expanding our commitment to improving care for all people living with Charcot-Marie-Tooth disease, the CMTA will be hosting a 2022 Clinical Summit for health professionals on Friday, November 4 from 10 am – 2 pm Eastern Time. Multiple in-depth accredited sessions will be offered for medical teams including neurologists, physical therapists, occupational therapists, genetic counseling, and more.

We are partnering with the best disease experts in the industry to create an incredible day of education. Please save the date and stay tuned for more details surrounding the agenda.

If you have any questions or if you are interested in presenting at the conference, please reach out to Laurel Richardson / Director of Community Outreach: Laurel@cmtausa.org.

 

2022 CMTA Summit Reseachers

What People Have to Say

Some kind words about our Summit

“Unrivalled!”

The CMTA’s inaugural CMT Clinical Summit provides an unrivalled opportunity to connect with CMT experts and colleagues from around the world. The CMTA’s Strategy to Accelerate Research (STAR) and global consortium of researchers, clinicians and alliance partners is driving rapid advances in CMT research. This Clinical Summit provides an essential opportunity for all those working with CMT patients to refresh and update their knowledge and practice.

Dr Katherine Forsey
Chief Research Officer, CMTA

“First of its Kind!”

With the goal of expanding our commitment to improving care for all people living with Charcot-Marie-Tooth disease, the CMTA is hosting the first of its kind CMT Clinical Summit. CMT experts will be providing disease education in the areas of neurology, genetics, clinical trials/studies, surgical intervention, PT/OT, breathing-related issues, and social work. It has been a desire of the CMT patient community for years that their general health care professionals learn more about CMT. We are elated to make this type of education a reality.

Laurel Richardson
Director of Community Outreach, CMTA

“Unprecedented!”

Driven by the CMTA’s global leadership in developing Charcot-Marie-Tooth disease modifying treatments and ultimately a cure, CMT understandings are advancing at an explosive rate. The CMTA’s unwavering commitment to improve the lives of everybody living with this rare and complex disease, the first ever CMT Clinical Summit provides an unprecedented opportunity for physicians and practicing clinicians to learn about the latest discoveries of disease cause, to learn about the latest understandings of disease presentation, and to learn about cutting-edge CMT clinical management strategies that have the potential to change the lives of the CMT patients they care for. This is a pioneering event like no other.

Kenneth Raymond
CMTA Advisory Board Member and Patient Advocate

2022 CMT Clinical Summit Agenda

(Subject to Change)

  • 10:00 am – 10:25 am ET – Keynote Speaker: Research Highlights in CMT (STAR)

  • 10:30 am – 11:05 am ET – CMT Neurology

  • 10:30 am – 11:05 am ET – Physical Therapy for CMT
  • 11:10 am – 11:45 am ET – CMT Clinical Trial / Studies and Patient Recruitment
  • 11:10 am – 11:45 am ET – Occupational Therapy for CMT

  • 11:45 pm – 12:00 pm ET – Coffee Break / Networking

  • 12:00 pm – 12:35 pm ET – Genetic Testing / Genetic Counseling for CMT

  • 12:00 pm – 12:35 pm ET – CMT-related Breathing Impairment / Sleep Apnea

  • 12:40 pm – 1:15 pm ET – Surgical intervention: When is it time to refer?

  • 12:40 pm – 1:15 pm ET – Social Work: Navigating School 504 / IEPs

Send Us A Message

Connect With Us Today

Connect With Us Today